Solitary Fibrous Tumor Foundation
We are building the trusted resources, research connections, and organized voice that people living with Solitary Fibrous Tumor deserve. |  |
What is SFT?
Solitary Fibrous Tumor is an ultra-rare sarcoma. Patients are scattered across cancer centers, countries, and online groups—often without disease-specific guidance or a clear path to expert care.
equalizer
<1 per 1 million people
Annual diagnosis rate
biotech
NAB2-STAT6
Defining gene fusion
all_inclusive
Long-term
Surveillance matters
Why the SFT Foundation?
Closing the gaps that leave people behind. We are building the trusted resources, research connections, and organized voice that people living with Solitary Fibrous Tumor deserve. | SFTF was formed so no one affected by Solitary Fibrous Tumor has to navigate an ultra-rare cancer alone or without reliable guidance. By bringing patients, caregivers, clinicians, researchers, and advocates together, we can turn a scattered community into a coordinated force for better care, stronger research, and lasting change. |
Our missionTo improve the lives of people affected by SFT by fostering community, advancing education, accelerating research, and advocating for better outcomes and access to care. | Our visionA world where every person affected by SFT has accurate information, a supportive community, effective treatments, and ultimately, a cure. |