Research & Education
Learn about Solitary Fibrous Tumors and explore opportunities to contribute records, tissue, participation, or funding to focused research.
Inciteful Med SFT Patient Guide
A guide to navigating SFT diagnosis, treatment, risk, and long-term monitoring.
Horowitz SFT Initiative
The University of Miami Health System initiative advancing focused research for SFT, including an SFT registry.
Pattern.org
A Rare Cancer Research Foundation initiative that enables patients to donate tumor tissue and medical information for research.
Support SFT research at UT Dallas
Honor Dr. Heather Hayenga’s legacy by helping to fund laboratory research focused specifically on SFT.
ClinicalTrials.gov
Clinical trials are often where new sarcoma treatments are tested. Because SFT is rare, trials may be listed under sarcoma rather than SFT specifically. Patients can search independently, but it is often more effective to ask their care team to actively look for relevant trials and discuss options together as part of treatment planning.
Sarcoma Treatment Centers (SFA)
Many patients seek care or second opinions at centers with dedicated sarcoma programs. This list from the Sarcoma Foundation of America reflects sarcoma expertise broadly — patients are encouraged to contact centers directly and ask about SFT experience.
Sarcoma Alliance Second Opinion Grants
Some patients may benefit from financial assistance to obtain a second opinion at a sarcoma center. The Sarcoma Alliance offers Second Opinion Grants that may
A note about these resources
External resources are shared for education and community support. SFTF does not review, endorse, or control their content, and inclusion does not replace guidance from your medical team. Resource list adapted from “Lori’s Resources for Solitary Fibrous Tumor Patients from SFT Patients,” updated February 26, 2026.