SFT Community Needs Assessment
The first community needs assessment for SFT
Solitary fibrous tumor is rare enough that no one has ever formally asked this community what it actually needs. We're changing that.
This survey — open to patients, caregivers, and anyone who has lost someone to SFT — takes about 10 minutes. It asks about your diagnosis experience, the information and support you had (or wished you had), and what would have made the biggest difference along the way.
Your answers remain anonymous and directly shape SFT Foundation's programs, resources, and advocacy priorities. There's no other data set like this for SFT — what we build next depends on what you tell us now.